The Assistance Fund Opens New Program for Rett Syndrome


Financial Assistance From The Assistance Fund Now Available for Eligible People Living With Rett Syndrome

The Assistance Fund, an independent charitable patient assistance organization that helps patients and families facing high medical out-of-pocket costs, today announced the launch of a new financial assistance program for people living with Rett syndrome. The program is designed to help eligible individuals pay for their out-of-pocket medical expenses related to Rett syndrome, such as copays, health insurance premiums, therapy administration costs, disease management such as prescribing-physician copayments, treatment-related travel costs, diagnostic laboratory tests, and genetic testing.

"People living with Rett syndrome face severe challenges that affect nearly every aspect of their lives," said Melissa Kennedy, CEO at the International Rett Syndrome Foundation. "I'm thankful to The Assistance Fund for opening this door to treatment for families and its longtime commitment to the rare disease community."

Rett syndrome is a rare neurological and developmental disorder impacting mostly female babies and infants. Common symptoms, including loss of hand and verbal skills, most often appear in the first two years. People living with Rett syndrome require a complex series of treatments to manage the condition and improve their quality of life.[1]

"While a diagnosis of Rett syndrome can be devastating for families with young children, access to medication and therapy can mitigate symptoms and improve their quality of life," said Gerald Lauria, Senior Vice President of Business Development and Strategy at The Assistance Fund. "We are tremendously grateful to our generous donors for enabling us to open our new Rett Syndrome Financial Assistance Program and help so many families in need."

To learn more or determine eligibility for financial support, visit or call (855) 509-2452 to speak with a Patient Advocate.

A list of all the disease programs available from The Assistance Fund can be found on the website

About The Assistance Fund

The Assistance Fund (TAF) is an independent charitable patient assistance organization that helps patients and families facing high medical out-of-pocket costs by providing financial assistance for their copayments, coinsurance, deductibles, and other health-related expenses. The Assistance Fund currently manages more than 80 disease programs, each of which covers all the FDA-approved medications that treat a specific disease named in the disease program. Since its founding in 2009, TAF has helped nearly 180,000 children and adults access the treatment they need to stay healthy or manage a life-threatening, chronic, or rare disease. To learn more about The Assistance Fund, or for information on how to donate, please visit

[1] Mayo Clinic, "Rett syndrome,", accessed February 2023.

Contact Information:
Margaret Figley
Senior Director of Communications
[email protected]

Original Source: The Assistance Fund Opens New Program for Rett Syndrome

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